Sorry it has been a while, i have been down, i think the wife brought home a cold bug
and it has had us drained, no real bad side effects from it, but just no energy at all.
Will post more in a bit.
Tuesday, October 9, 2012
Tuesday, October 2, 2012
Support
Support is very important with this disease, From where ever you can get it.
I have found a GREAT group online that i am a member of, which has both pre and post
transplant members.
There are roughly 200 of us, world wide although most are in the u.s.
There is so much to learn about whats goiing on within the body, that for one person to
try to take this on by them self would be way to overwhelming.
So if you are one facing liver issues and need a good group to ask questions and get
encouragment, dont hesitate to get ahold of me. We would be glad to have you among us.
We also have caretakers those that stick by us though all of this in our group as well, which
is great.
its nice to see all aspects of how this disease affects everyone involved.
ok, im not really into writing right now, kind of brain dead at the moment, but will come back later
today and write some more.
I hope everyone is having a good day.
I have found a GREAT group online that i am a member of, which has both pre and post
transplant members.
There are roughly 200 of us, world wide although most are in the u.s.
There is so much to learn about whats goiing on within the body, that for one person to
try to take this on by them self would be way to overwhelming.
So if you are one facing liver issues and need a good group to ask questions and get
encouragment, dont hesitate to get ahold of me. We would be glad to have you among us.
We also have caretakers those that stick by us though all of this in our group as well, which
is great.
its nice to see all aspects of how this disease affects everyone involved.
ok, im not really into writing right now, kind of brain dead at the moment, but will come back later
today and write some more.
I hope everyone is having a good day.
Monday, October 1, 2012
Lost in limbo
Well, been a while since i have seen my GI doc. Waiting for Medicare to kick in or Medicaid or something, because the insurance we have is caca.
We have to re-apply for medicare here in a few days and try it again. I guess we are just going to make this a routine, as soon as we get denied, go apply again. What are they gonna do, tell us no? *lol*
If we bug them enough maybe things will come around. My Gi doc is at a standstill, wants to start treatment for the Hep C, but we cant until insurance kicks in and covers the cost.
Sleep has been off and on the past few days. Today i feel run down, but did manage to get a few hours sleep. Although here is its 2am and im wide awake... good thing for movies on youtube. Because out normal tv stations all 6 of them suck about this time of night.
We were going to go to church last night, but just wasn't feeling up to it. I bet they are beginning to wonder if we abandoned them.. but with any luck things will get back to normal and we will show up next sunday. This week is revival and they are having sermons every night till wensday, but not sure i want to go then. Im not a people person, usually lots of new people show up then. Kind of like holliday's. You will never see me at a church on a holliday. Its just something i dont do.. to many show up, the only day of the year they go, the place is packed and you look around and wonder who all the new faces are, when you ask, you are told they are members from way back... to me thats just not right. So i avoid hollidays, mainly so i dont have to hold my tongue and end up saying something i shouldnt. I know me... i probably would.
Jordi was wound yesterday, lil nut, she was funny as heck, just all sorts of cutting up and having fun. Thats my snuggle bug. Enjoy it while i can before she outgrows it like her brother.
well gona run for now. sorry its such a boring read lately, my mind has been elsewhere. To many things to think about and worry about. Hope if you are reading this you are doing good.
We have to re-apply for medicare here in a few days and try it again. I guess we are just going to make this a routine, as soon as we get denied, go apply again. What are they gonna do, tell us no? *lol*
If we bug them enough maybe things will come around. My Gi doc is at a standstill, wants to start treatment for the Hep C, but we cant until insurance kicks in and covers the cost.
Sleep has been off and on the past few days. Today i feel run down, but did manage to get a few hours sleep. Although here is its 2am and im wide awake... good thing for movies on youtube. Because out normal tv stations all 6 of them suck about this time of night.
We were going to go to church last night, but just wasn't feeling up to it. I bet they are beginning to wonder if we abandoned them.. but with any luck things will get back to normal and we will show up next sunday. This week is revival and they are having sermons every night till wensday, but not sure i want to go then. Im not a people person, usually lots of new people show up then. Kind of like holliday's. You will never see me at a church on a holliday. Its just something i dont do.. to many show up, the only day of the year they go, the place is packed and you look around and wonder who all the new faces are, when you ask, you are told they are members from way back... to me thats just not right. So i avoid hollidays, mainly so i dont have to hold my tongue and end up saying something i shouldnt. I know me... i probably would.
Jordi was wound yesterday, lil nut, she was funny as heck, just all sorts of cutting up and having fun. Thats my snuggle bug. Enjoy it while i can before she outgrows it like her brother.
well gona run for now. sorry its such a boring read lately, my mind has been elsewhere. To many things to think about and worry about. Hope if you are reading this you are doing good.
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